10/14/09

All Dressed Up and No Place To Go

Terry sure looks happy for a girl with cancer. The picture on the left is a recent photo taken for our church directory. The caption for this item is really a misnomer. We have been going a lot of places and visiting with many of our friends and family. We just dress more casually.
If everything goes right, Terry is scheduled to be admitted to the University of Michigan on December 1st for her stem cell transplant. We won't know about that for at least a few weeks.
This week Terry had to stop her chemotherapy as she has developed a case of shingles. I am no longer the only pain in her side. We don't know what this will do to her moving forward with the transplant. We will learn more in about a week.
This disease really sucks! Just when things seem to start to fall in line, something else appears and screw things up. Through all of this, Terry has had a great attitude. Someone wrote on the blog that she is a hero. She's got my vote too.
Soon after the transplant and the disease is put into remission, we will get all dressed up and have plenty of places to go.
Thanks again to all for your prayers, cards, notes, calls, etc. We are blessed to have so many friends.

10/1/09

A NEW MONTH - ANXIETY AGAIN

Terry has been taking her new regimen for a few months now and is tolerating it well. We thought her next bone marrow biopsy would be at least a month away. To make a long story short, Dr. Bloom ran another test measuring Terry's light chains. No, not the type you have in your closet! Her multiple myeloma is a kappa light chain type. Her kappa free light chains have been averaging anywhere from 22.1 to 25.4. Normal should be 0.33 to 1.94. Since she has been on this new medication, Velcade, her kappa light chains have dropped to 2.74. That is a remarkable result! However the proof of the pudding is in the tasting - in this case testing. We received a message from the transplant team, that they want a bone marrow biopsy scheduled soon. If that comes back as they suspect Terry will now get her stem cell transplant the first week of December.
Now it is time to get nervous again. If you have any extra prayers left, please say one for Terry to do well in the biopsy.
Thank you all for the cards, prayers, calls, e-mails, concerns and prayers. Yes, I meant to say prayers twice.